Single Parenting When You Have Disabilities

I'm going to do some writing and soul searching about this in my blog, but I wanted to post it here to be sure I could get some advice.

I haven't talked about it much, but I've been diagnosed with rheumatoid arthritis. RA destroys your joints and eventually I might be completely disabled. Right now I have lots of swelling in my feet, hands, knees, and back. I am in lots of pain.

I'm a single mom, and I know it's time I really take a look at how I'm going to parent my very active son and daughter alone as this disease progresses.

Is anyone else in this position? Can anyone offer some advice?

I feel like my kids are being cheated. I can't take them to amusement parks, fireworks, etc. Things that involve a lot of walking or physical activity. I get really worn out, and my feet swell where the R.A. is during ball games that my diva cheers at or little man plays in. Diva is going to cheer in December in Memphis at the Liberty Bowl and I was asked to go as a chaperon. I'm worried about all the walking and the busy, busy schedule they have set with all the activities for the cheerleaders.

by Dorene-Page 208 Posts
Posted on 7/13/2008 12:29 PM

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Tags: single parenting , co-parenting , parenitng with disabilities

Answers for "Single Parenting When You Have Disabilities" (2) (You must be logged in to answer)

I'm on methotrexate. I've taken it for six weeks and it hasn't helped yet. My doc said they've used it for years. It has horrible side effect like hair loss and vomiting. I've had the stomach problems.

I will ask him about other meds. I need to be more proactive in my healthcare, but I'm always quiet and intimidated by doctors, especially this specialist. I know I should't be, but I am.

by Dorene-Page 208 Posts
Posted on 7/14/2008 10:37 AM

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have you looked into all of the new medications that are available for sufferers of RA? They are called "biologics" as opposed to the simple pain relief...I think the one my father in law is on is called Embrel...

I suggest you have a consultation with your doctor, explain to them you needs due to your kids and what you feel you are limited in doing, and they can work with you on the right medicinal "cocktail" to get you up and going.

by spaznskitz 7745 Posts
Posted on 7/13/2008 3:08 PM

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